I will write more about this experience later, but I just found out that the fly-fishing trip that I recently took was featured on the Channel 6 news here in Omaha. Here is the article and video if you would like to check it out: Healing Through Fly-Fishing. And if you have troubles picking me out, I’m the one with the purple sleeves and the grayest hair, yeah… that’s right.
Life has been a little crazy lately. But with everything coming due or finishing up as of the first of this month, I am hoping this will free up some of my time to tell you all about what has been going on recently. (Although there is still one big project that needs to be turned in and on which I should be working – luckily for you all I forgot it at home, oops.)
The biggest news that I have is the series of lasts that I experienced in September. My last MUGA scan was this month. These have always come out good (although never as good as that 72-year-old man I met during the first one). So as long as I experience no signs or symptoms of heart damage, there is no reason for me to have another one. My last treatment was also this month. I will be keeping my port, so I will still need to go in and get it flushed, but sitting in a chair for hours on end being pumped with chemicals is now a thing of the past. And finally I had my last CAT scan to see how the treatment went. Again, as long as I stay cancer sign and symptom free this should be the end of my CAT scan days.
Surprisingly all of these lasts are quite bittersweet.
Tina, the woman who does all my MUGAs, has been there since the beginning. She was the one who did my initial bone scan on the day after I was diagnosed. We reminisced about this during my last MUGA. That day I had been (hopefully understandably) a mess. At one point, due to a phone call I should not have received, we had my PA and my Nurse Navigator in the room with her trying to calm me down. I was a wreck. We can laugh about this now since she knows I am not actually a crazy person. It was almost sad when I said goodbye after the scan. On the one hand I never want to have to see her again, but on the other seeing each other regularily for the last year we’ve gotten to know each other pretty well.
This is the same for the chemo room. Sure I hated that area of the hospital for sometime, but I was also always taken care of there. You get to know your nurses in that room, since you spend more time with them than many of your friends for a while. That final treatment I couldn’t help but feel sad. But that isn’t the only emotion you feel and I think that can best be exemplified in my last doctors appointment (for a while anyway).
After my CAT scan I had a doctors appointment to discuss the results that the test would find. Ryan and I were brought back into an exam room. The nurse who brought me back took my blood pressure, which was the highest it had been in my year of treatment. He asked if I was nervous, and after crackling out a “yes”, I started to cry. I had been dreading/waiting for/looking forward to this appointment for so long, but the build up of tension was taking its toll. He left the room and said that the doctor would be in soon. Soon is a VERY relatve term, especially when you are waiting for the worst. We had passed by my Nurse Navigator, Stacey, and my doctor in the hall on the way to the exam room. During the time that I waited for them to enter our room I analyzed ever twitch, sigh, whisper, and word that passed between them during the 4 seconds I watched them in the hall.
“They wouldn’t look at us – that can’t be good.”
“They seemed so serious – probably trying to decide how to tell me.”
“I think I saw one of them shake their head, definitely a sign of pity.”
Never once during this internal monologue (there was no way I was sharing these hopefully irrational probably crazy fears with Ryan) did I think that they could have been discussing anyone else’s case but my own. I realize now that yes, this is complete and blatant egotism, but at that point the world was in fact revolving around me.
Stacey entered first and started some small talk that I have absolutely no recollection of at this point. I just remember inside my head the sound of screaming, “why are we talking about this, tell me my results!” Luckily when Dr. Shah entered, the first thing that he said was that the tests looked great. With these words I released tension that I had been holding for the last 16 months. The rest of the appointment was quite relaxed, although again I have very little recollection of anything that we talked about (hopefully it wasn’t too important). It wasn’t until the end of the appointment with the words, “well, I guess we’ll see you in January”, that all of the tension returned.
January?!? Throughout treatment I dreamed of a time that I would not have to come to the hospital for months at a time. I was so excited when I had reached even one week without having to enter a hospital or see a doctor, why wasn’t a 4 month hiatus that much more exciting? Well, excitement was definitely not an emotion that I would name for this moment, terror would be much closer to the truth.
There is a peace and comfort that I had been getting from all of the appointments and time spent at the hospital. I was being monitored and taken care of. I had had the same feeling at the completion of chemo. You want to be finished and go back to life as you knew it before your diagnoses (which is actually impossible), but it is scary not having that connection to the people whose jobs it had been to keep you alive.
I heard recently that people with “doer” personalities have the hardest time with the completion of treatment. You are no longer actively “doing” anything to fight against your disease. That lack of action creates anxiety and fear, plus there is a good chance that all that “doing” has taken you away from dealing with these realities and emotions to begin with. Basically the definition of my time in treatment.
Uff, duh. This has become a long post.
What I wanted to tell you in beginning of this post was: I am cancer free. As you can see if you finished this post all the way through, a cancer free body does not mean a cancer free life. There will be the obvious changes in life due to continual appointments and scans for the rest of my life. But no matter how far the time between these become, cancer will always be a part of my life. This isn’t a bad thing or even a hopeless or disheartening thing. It just is. It is a piece of the new life I have now after being diagnosed, and I just need to decide where it fits in that life and how I can use it for my benefit.
When I looked at the donation standings today, I found some bad news. Our team is no longer the clear winner with a $1000 lead on the next team. At this point we are only $300 away from being upset by the #2 team. No one wants this!
Then, I realized that I really haven’t made much of a call for donations through this blog venue. Many of the post I have written are in some way affected by the efforts of the Komen organization. The Image Recovery that I blogged about yesterday receives a large chunk of its budget from Komen. Through Image Recovery I received a wig, which in the end was paid for by Komen. Plus all the posts about the Race for the Cure. The Komen organization is really seeped into many aspects of the care that many breast cancer survivors receive. In some states it’s the only way that uninsured women are able to get diagnostic mammograms, early on before a breast self-exam would detect anything.
So if you haven’t had an opportunity to donate or were waiting for the most dramatic time to swoop in and do so, now is your chance!
Thank you on behalf of all survivors; past, present, and future.
I had the opportunity a couple of weeks ago to speak with a journalist from the Omaha World Herald about my experience at (the wonderful) Image Recovery, Alegent’s salon for cancer survivors. This is the place that I had my head shaved, where I got my wig (Vickie – also featured in the Herald this week, although with Ryan, not me), my prosthetics, bras, and an incredible amount of emotional support and understanding. Not to be too much of a commercial for Alegent, but the Image Recovery and Nurse Navigator programs were integral to my success in treatment (thank you, Beki and Stacey).
They just posted the video this morning and I thought that some of you may be interested in seeing it. Oh, and a warning for all of you (Kristine) who read these posts at work, this may be one you want to wait to watch at home. The video is at the bottom of this link: Mirror, mirror on the wall, who is that? – LivewellNebraska.com.
This has been the craziest month of my life, okay so there may be some exaggeration there. But pretty busy none the less. Between Race for the Cure (if you’d like to donate click here), school, doctor’s appointments, roller derby, fly-fishing, the list goes on and on, I have had barely enough time to catch my breath.
You may have noticed a few teasers in the last sentence. That’s to keep you listening. I have plenty to write about and when given a few moments to myself that is exactly what I plan to do.
In the mean time, here is a little treat that should “entertain” and give you a little boost of team spirit for the up-coming Race for the Cure.
And if there was ever any doubt before, you should know now that I love you all. Love is the only way I would be crazy enough to put this psychotically unflattering video on the internet. Plus maybe this will give us a few pity/shame/embarrassment donations, guess it couldn’t hurt.
Enjoy (I know I won’t),
P.S. Note addition of a backup baritone at about 1:39, thank Adam!
How do you say thank you to the man…
…who after only six months of marriage sat with you for every doctors appointment and scan?
…who shaved his head, so he would always be the one with the shortest hair in the house?
…who followed you up a hill (even though you were yelling at him at the time not to) just to make sure you were okay as you puked, even though you had no hair to hold?
…who has somehow seen beauty in baldness, puffiness, crankiness, and bitchiness?
…who cleaned the house, made dinner, did laundry, mowed the lawn, walked the dog, shoveled snow, made a living, and all the other things that you didn’t even realize that he took care of with out any help from you?
…who sat in silence because you didn’t want to be alone but couldn’t even talk?
…who to this day won’t even suggest Jimmy John’s let alone choose a path that brings you near the nausea-inducing establishment?
…who sat and listened patiently to all the crazy fears you were able to conjure up, when fevers, nausea, and pain took hold of your mind?
…who went to the grocery store at whatever hour of the day to quench bizarre cravings for mash potatoes, life-savers, or popsicles even though he knew you wouldn’t eat them anyway?
…who no matter how bad life got always made it better?
Hope this was a start.
I love you Ryan and I hope I never have to repay you for your year (+) of kindness. (I can almost guarantee that I wouldn’t be as good at it.)
Who knew when I said that I would attempt to blog weekly that this would be such a tall order. Now that my life is becoming less and less dictated by treatment and side effects it seems almost impossible to sit down and take the time to write anything. The other issue being that I don’t have nearly as much to say. With cancer being a less and less frequent word in my vocabulary it seems that their is less and less to talk about in regards to it. Although it may not get talked about in everyday life or need to be referenced in each aquantance I make, I wouldn’t say it has moved any farther to the back of my brain though. My head still constantly swims with thoughts of cancer, children, reoccurance, survival rates…
But I’m getting away from my topic. Lagging… and it’s not just me.
I know we don’t want to hear about it. Hey, I know. It’s only just turned September and already I feel like we are in the last moments. If you haven’t figured it out yet, I’m talking about the Race for the Cure. My own fundraising is lagging and we will see to what degree when Daniel posts his earnings from the Fun for the Cure event that he hosted at the Fox and the Hound. For those of you who were unable to come it was a blast. Fun, food, drinks, and prizes – where could we go wrong. For Daniel this party was strickly business though and from the initial rumors I am hearing it sounds like he will be blowing the rest of the Nebraska fundraisers (myself included) out of the water here shortly. You’re a sly one #11, but boy do you know your stuff!
If you haven’t done so yet, please consider:
1. Donating to the Race for the Cure: I am still only about a third of the way to my goal and really want to make the Pink Honor Roll again this year. Plus, I haven’t been able to find the Survivor standings, but when they do post I would love to be at the top (and of course beating our competition from last year – Virginia).
2. Joining our team the Hakuna My Tatas: (you must sign up for teams by September 18). Even if you are unable to get to Omaha or Kearney on the days of the race (or just don’t want to get up that early) you can still be part of the team! Their is an option to “Sleep in for the Cure”. If you choose this participation option you get to be part of winning team without setting your alarm clock!
It has been a slow start, but let’s get our fundraising motors running. Let’s make Hakuna My Tatas the team to beat in 2012!!!
P.S. It has been so long since I posted that I have forgotten how to do it! I made this post it’s own page on accident. Sorry for any confusion.